|
|
|
|
|
|
Katelyn Haney donates her hair to Wigs for Kids
| Submitted: February 26th, 2010
By: |
This is our beautiful little girl Katelyn. Katelyn is 3 ½ years old and she, along with her brother Jaxon is the light of our lives. Unfortunately Katelyn was born with an extremely rare genetic disorder called Tetrasomy 18p. Children with this condition are developmentally delayed, they are usually mentally impaired to some degree, they have difficulty with coordination and mobility, vision problems are common as is hearing loss, they are susceptible to infections of all types, speech and eating are very difficult due to deformities in the palate and finally heart defects are often present as well.
What this means for Katelyn is that she will live the problematic life of a special needs patient. This has been an extraordinarily enlightening experience for our family. While the last few years have proved to be challenging, we’ve learned so much about the lives of children and families who are forced to learn to function and to survive through the difficulties brought on by medical issues of all sorts. As residents of the Niagara Region we have been extremely fortunate in the services and support that have been provided to us. Katelyn, Jaxon and we, Katelyn’s parents, would like to show our gratitude by trying to help other Niagara families who find themselves in similar situations.
On Wednesday, February 17th , Katelyn had her long hair cut at the Valvano Salon Spa, 134 Niagara St in St. Catharines. Pledges are being accepted on her behalf. We have been involved with the Wise Guys Charity Fund for 20 years and therefore we are confident to have them disperse the money raised for 3 organizations that are important to us: The Chromosome 18 Registry for research into Tetrasomy 18p, the Niagara Peninsula Children’s Centre and the Niagara Health System’s new cancer centre here in Niagara. We are also donating her hair to “Wigs for Kids”. It will be used to make a wig for a child undergoing chemotherapy.
We’d like to thank everyone who has taken the time to learn a little bit about why we’re doing this. Please help us to help Katelyn and so many other kids on their journeys.
Katelyn’s proud parents, Shelley and Tony Haney.
|
|
|
|
